Memory Support Links & Readings

suggested readings

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Creating Moments of Joy for the Person with Alzheimer's or Dementia: A Journal for Caregivers


Jolene Brackey

Short Stories creating a positive perspective on coping.

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The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss


Nancy L. Mace,
Peter V. Rabins

A family guide to caring for people who have Alzheimer’s Disease, related dementias and memory loss.

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I'm Still Here: A New Philosophy of Alzheimer's Care


John Zeisel

endorsed by Daniel Goleman, author of ‘Emotional Intelligence’. A new philosophy of Alzheimer’s care…

1. Effectively manage the 4 A’s: agitation, apathy, anxiety and aggression
2. The 5 keys for meaningful communication
3. The 7 rules of relationship building
4. Reconnect through art, music, film, and poetry

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Susie & Herman:
A Story of Love and Caregiving


L.B. Smith

The memoirs of a caregiver for family members with dementia

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Still Alice


Lisa Genova

Still Alice-is a compelling debut novel about a 50-year-old woman's sudden descent into early onset Alzheimer's disease.

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Chicken Soup for the Soul: Living with Alzheimer's & Other Dementias: 101 Stories of Caregiving, Coping, and Compassion


Amy Newmark
Angela Timashenka Geiger

Caring for a loved one with Alzheimer’s or another form of dementia? You are not alone. With 101 encouraging and inspiring stories by others like you, this book is a source of support and encouragement throughout your caregiving journey.

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Looking for Lionel: How I Lost and Found My Mother Through Dementia


Sharon Snir

Looking For Lionel: Is a warm, insightful memoir about how dementia entered Sharon Snir's family and left them struggling with fear and sorrow. As Sharon shares her inspirational story, she invites you into her world of laughter and tears. Written for family and friends of those with the disease, it helps readers regain their courage and find the joys of relating in the here and now.

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Remembering the Music, Forgetting the Words: Travels with Mom in the Land of Dementia


Kate Whouley

Recounts the author’s relationship with her mother, both as a child admiring her mother, an innovative educator, and as an adult coping with caring for her Alzheimer’s- affected mother.

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The Validation Breakthrough: Simple Techniques for Communicating with People with Alzheimer's and Other Dementias

Naomi Feil
Vicki de Klerk-Rubin

Super techniques for communicating with people with “Alzheimer’s-Type Dementia.”

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Jan's Story: Love Lost to the Long Goodbye of Alzheimer's


Barry Petersen
Katie Couric

A full, rich story of two people--and thousands like them--for whom "forever" suddenly has an expiration date.

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Strengthen Your Mind: Activities for People with Early Memory Loss Volume 1


Kristin Einberger
Janelle Sellick

Strengthen Your Mind contains dozens of activities and worksheets for persons with early memory loss across a broad range of interests to stimulate the mind, memories, and the senses.

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Strengthen Your Mind: Activities for People with Early Memory Loss Volume 2


Kristin Einberger
Janelle Sellick

Strengthen Your Mind contains dozens of activities and worksheets for persons with early memory loss across a broad range of interests to stimulate the mind, memories, and the senses.

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The Memory Box


Mary Bahr
David Cunningham

When Gramps realizes he has Alzheimer's disease, he starts a memory box with his grandson, Zach, to keep memories of all the times they have shared.

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Striped Shirts and Flowered Pants:
A Story about Alzheimer's Disease for Young Children


Barbara Schnurbush
Cary Pillo

With gentle reassurances and support from her family, Libby learns how the disease will ultimately affect her grandmother. She discovers ways to handle her feelings and worries, and she realizes that it is okay if she and her Nana wear striped shirts

with flowered pants.

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Still My Grandma


Veronique Van Den Abeele
Claude K. Dubois

With charming, sensitive illustrations, this story gently introduces young readers to the realities of Alzheimer’s disease, and reminds them that love is more powerful than any illness can be.

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Green Kitty


Alexandra Faer Bryan

The grandmother has recently been placed into assisted living due to her dementia and their bond grows stronger through the visits despite the illness. Helpful information about Alzheimer's disease is deftly woven into the work.

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What's Happening to Grandpa?


Maria Shriver
Sandra Speidel

Shriver has written a full-color, hardcover children's book about a grandparent with Alzheimer's disease. Shriver walks a girl through acceptance and a beginning understanding of her Grandpa's condition. This well-meaning book is clearly and lovingly written.

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Today's Caregiver Magazine

Today's Caregiver is a national magazine for caregivers that contains feature articles, interviews, book reviews, letters, poetry, advertisements and advertiser index. Specific articles are searchable from the search function.

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Take Care Newsletter: National Family Caregivers Association (NFCA)

Take Care is a quarterly newsletter of the National Family Caregiver's Association with evidence based research and practical caregiver advice. A "question and answer" column and resource information is included.

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Alzheimer’s Association

The Alzheimer’s Association provides detailed information about research, caregiver resources and chapter information that services your area. They have a 24/7 care line for individuals to call who need immediate assistance. Registration is also available for e-newsletters and fundraising information.

24/7 Helpline: 1.800.272.3900

Alzheimer’s Disease Resources

Check out informative publications from Alzheimer’s Disease Research, newsletters with research updates, organizations that can provide assistance in many areas, from financial aid to senior housing, medical illustrations and videos, a list of helpful books, and memory games and exercises.

Alzheimer’s Foundation of America

The mission of the Alzheimer’s Foundation of America (AFA) is “to provide optimal care and services to individuals confronting dementia, and to their caregivers and families- through member organizations dedicated to improving quality of life.

American Parkinson’s Disease Association

As the country’s largest grassroots Parkinson’s disease organization, the American Parkinson Disease Association (APDA) improves the lives people with Parkinson’s disease and their families from coast to coast with patient/caregiver support; education and positive lifestyle programs; awareness, social and fundraising events; and scientific research funding at all levels.

Lewy Body Dementia Association

The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association’s purposes are charitable, educational, and scientific.

LBD Caregiver Link – 800.539.9767

The Association for Frontotemporal degeneration (FTD)

Frontotemporal degeneration (FTD) is a disease process that results in progressive damage to the temporal and/or frontal lobes of the brain. It causes a group of brain disorders that share many clinical features. FTD is also commonly referred to as frontotemporal dementia, frontotemporal lobar degeneration (FTLD), or Picks disease.

Care Crossroads

Care Crossroads is an innovative, interactive “community of care” Web site that helps family caregivers meet other caregivers, learn about the brain disorder and connect “live” with experts. Among the site’s highly-versatile and unique features, AFA’s social workers are standing by 9 a.m. to 5 p.m. (Eastern) Monday to Friday to respond to questions and concerns on caregivers’ own communication terms: online via Skype and live chat, as well as e-mail and phone calls to the organization’s toll-free hot line at 866-232-8484. Caregivers can meet other caregivers via a discussion board, “I Care” video stories and creative contributions.

General:

National Institute of Health – Free Publications
John’s Hopkins News Alerts

Magazines/Journals:

Take Care: National Family Caregivers Association (NFCA)

Take Care is a quarterly newsletter of the National Family Caregiver’s Association with evidence based research and practical caregiver advice. A “question and answer” column and resource information is included. Sign up or read past issues

Today’s Caregiver Magazine / Caregiver Media Group

Today’s Caregiver is a national magazine for caregivers that contains feature articles, interviews, book reviews, letters, poetry, advertisements and advertiser index. Specific articles are searchable from the search function. Download issues in PDF or subscribe